WHY BUILDING OUR COMMUNITY MATTERS
“When you stand and share your story in an empowering way, your story will heal you and your story will heal somebody else.” ~Iyanla Vanzant
Sharing your story, experience, and life with the others impacted by rare diseases and those who care about them will help us all find connection and community in a place that can feel isolating. Show the beauty that comes in diversity and learn more about others who also live lives impacted by rare diseases.