Rare Disease Day is the globally coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.
Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year.
Rare Disease Day was set up and is coordinated by EURORDIS and 65+ national alliance patient organization partners. Rare Disease Day provides an energy and focal point that enables rare disease advocacy work to progress on the local, national, and international levels.
Rare Disease Day Tucson
Rare Disease Day Tucson emerged from a grassroots effort within the local community of Tucson, AZ, aimed at celebrating International Rare Disease Day. Started by dedicated families and individuals impacted by rare diseases, this event serves as a vital platform for raising awareness and fostering solidarity among families facing similar challenges.
Through collaborative efforts with local healthcare professionals, advocacy groups, and community organizations, Rare Disease Day Tucson offers a supportive environment where families can share their stories, access resources, and connect with others on their journey.
This local initiative reflects the global spirit of Rare Disease Day, emphasizing unity, empowerment, and hope.
A disease might be RARE. But HOPE shouldn't be.
RARE DISEASE DAY
THANK YOU TO OUR PREMIUM SPONSOR & RARE DISEASE CHAMPION, CORD BLOOD REGISTRY!
