Reed's Story

Hello, my name is reed Johnson I was born with neurofibromatosis type 1. This makes me smaller for my age and includes things like dysgraphia, dyslexia, autism, and ADHD. I can also get tumors on the nerve endings in my body. Luckily I don't have any that are problematic. I don't let my condition define me. I am unique and capable.

Neurofibromitosis Type 1

Neurofibromatosis 1 (NF1), historically called von Recklinghausen’s disease, is a genetic disorder characterized by increased risk of developing noncancerous (benign) and cancerous (malignant) tumors, as well as various other physical and neurological manifestations. The most prevalent manifestations of the disease are multiple tumors of nerves and skin (neurofibromas), as well as areas of abnormal skin color (pigmentation). The abnormal skin color typically includes pale tan or light brown discolorations (cafe-au-lait spots), freckling in atypical locations such as under the arms (axillary region) or in the groin (inguinal region).